If you are a medical professional

I worked at a major insurance company for 5 years, plus 3 months of training. So I've had training in HIPAA, medical terminology, medical coding and read medical records all day long as part of my job.

This site is not really aimed at medical professionals. As stated elsewhere, it's aimed at a knowledgeable patient frustrated with the limitations of current medical knowledge and care.

I have been treated really badly for a lot of years. My CF specialist,  a pulmonologist at UC-Davis Medical Center in Sacramento, California told me "People like you don't get well. Symptom management is the name of the game."

I replied to that with "This particular infection has to go as it is KILLING me." He looked like I had slapped him in the face and he physically took a step backwards. 

When I got better, he expressed zero curiosity as to how that was happening. He simply scheduled me fewer visits and told me he had patients that actually needed him.

When I moved away, I didn't bother to look for a new doctor. I wasn't diagnosed until I was 35. I grew up with the idea you go see a doctor when you NEED a doctor and doctors weren't really helping me.

The CF community gets trained to see a doctor at least twice a year for checkups. My oldest son has the same diagnosis I have. He is more openly hostile to doctors and western medicine than I am.

People online don't bother to ask about my back story. They just jump to the conclusion that I'm an extremist nutter REFUSING medical care AND "denying" my son medical care.

I do my best to support what I say with links to studies in addition to my firsthand ("anecdotal") experience. I have reason to believe that SOME info here is adequately supported that it could be readily used by a medical professional based on linking out to existing studies and knowledge. 

But that's not really the purpose of the site. So if you are a medical professional and wish to use what's here, you may need to come up with your own "support" to cover your ass legally.


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