Self-Fulfilling Prophecy
"The normal progression of CF" is an expression I have mentioned previously on this blog. It gets used by medical professionals to assure cystic fibrosis patients that their declining health is completely NORMAL for their condition and try to dissuade them from aggravating the doctor with demands for actually helpful care that will stop the decline.
When I was on CF lists, there was ONE doctor in some Midwestern state iirc who had a reputation for getting better results with CF patients than other doctors got. Some patients traveled long distances to see him and reported seeing not just stabilization -- NOT declining further -- but actually reversal of symptoms to some degree.
I and my son have been able to reverse our symptoms very dramatically. Based on a gray shadow that used to appear on my x-rays and no longer does plus how it felt, I believe I had a hole in my left lung at one time and I don't anymore.
I'm divorced because my husband was all too willing to enthusiastically agree with medical science that my genes were killing me and there was nothing that could REALLY be done about it. This was essentially his excuse for not trying very hard to protect my health, a thing I have talked about previously on this blog.
Once he moved out, my battle to get better got vastly easier. Someone living with you and sexually intimate with you can quietly sabotage germ control efforts a zillion different ways while playing stupid and acting like you are overreacting and being unreasonable to expect them to give a damn about your health and welfare.
At one of my medical appointments with my CF specialist, he told me something like "When you have CF, you are just basically chronically infected. Symptom management is the name of the game." and I replied "That may be true, but THIS particular infection has to go as it is KILLING me."
He physically took a step back and looked like I had slapped him in the face.
As my condition improved, he expressed zero curiosity as to how that was happening. Instead, he scheduled me fewer checkups "because he had other patients that actually needed him."
And then assholes on the internet inevitably act like I am a quack who "refused" medical care and "rejected" doctors to pursue my nutty alternative remedies. No, doctors rejected me, thanks.
If you state that there is no fixing me and you follow that up with not bothering to try to fix me, don't be all shocked when I remain broken. That's called self-fulfilling prophecy.
That seems so extremely, highly obvious to me and yet everyone acts like I'm a loon if I try to suggest that perhaps they just aren't really trying all that hard to help people like me and could stand to make more of an effort.
When I was on CF lists, there was ONE doctor in some Midwestern state iirc who had a reputation for getting better results with CF patients than other doctors got. Some patients traveled long distances to see him and reported seeing not just stabilization -- NOT declining further -- but actually reversal of symptoms to some degree.
I and my son have been able to reverse our symptoms very dramatically. Based on a gray shadow that used to appear on my x-rays and no longer does plus how it felt, I believe I had a hole in my left lung at one time and I don't anymore.
I'm divorced because my husband was all too willing to enthusiastically agree with medical science that my genes were killing me and there was nothing that could REALLY be done about it. This was essentially his excuse for not trying very hard to protect my health, a thing I have talked about previously on this blog.
Once he moved out, my battle to get better got vastly easier. Someone living with you and sexually intimate with you can quietly sabotage germ control efforts a zillion different ways while playing stupid and acting like you are overreacting and being unreasonable to expect them to give a damn about your health and welfare.
At one of my medical appointments with my CF specialist, he told me something like "When you have CF, you are just basically chronically infected. Symptom management is the name of the game." and I replied "That may be true, but THIS particular infection has to go as it is KILLING me."
He physically took a step back and looked like I had slapped him in the face.
As my condition improved, he expressed zero curiosity as to how that was happening. Instead, he scheduled me fewer checkups "because he had other patients that actually needed him."
And then assholes on the internet inevitably act like I am a quack who "refused" medical care and "rejected" doctors to pursue my nutty alternative remedies. No, doctors rejected me, thanks.
If you state that there is no fixing me and you follow that up with not bothering to try to fix me, don't be all shocked when I remain broken. That's called self-fulfilling prophecy.
That seems so extremely, highly obvious to me and yet everyone acts like I'm a loon if I try to suggest that perhaps they just aren't really trying all that hard to help people like me and could stand to make more of an effort.
